28th February – 6th March 2022 is TOFS awareness week, along with rare disease day on 28th February and Swallowing Awareness Day on 16th March.

Over 5% of the world's population are affected by rare diseases. OA/TOF is a condition that affects 1 in every 3,500 babies born. Please help us raise awareness of #oa #tof and share this post. https://www.tofs.org.uk #tofs #oatof #RareDiseaseDay

Please spread the word! Press achieved through awarness raising last year:

https://www.inyourarea.co.uk/news/swansea-mum-finds-lifeline-over-sons-rare-medical-condition/

The press achieved last year in awareness week brought a TOF families together. A grandmother of a TOF child saw the article in the paper and sought others on social media, and they are now active members of the TOF charity and community. The two boys (just 4 months apart in age) are now in contact with each other and will support each other through their lives. What an achievement! Here are the boys recently down the beach.